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HOME > ARTICLES > AUTOIMMUNE DISEASE Latest Update: |
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Understanding Autoimmune Diseases, Including Autoimmune Thyroid Conditions
Autoimmune Diseases -- Web, Support Groups, Government Resources | ||||||||||
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Resources National Institutes of Health (NIH) Resources The following NIH components support medical research and/or provide information on varying aspects of autoimmune diseases. National Institute of Allergy and Infectious Diseases Office of Communications Bldg. 31/Rm. 7A50 31 Center Drive, MSC 2520 Bethesda, MD 20892-2520 (301) 496-5717 http://www.niaid.nih.gov/publications/ National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse/NIH 1 AMS Circle Bethesda, MD 20892-3675 Fast Facts: (301) 881-2731 (to receive information by fax) Clearinghouse: (301) 495-4484 http://www.nih.gov/niams/healthinfo/ National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Information Clearinghouse 1 Information Way Bethesda, MD 20892-3560 Diabetes, Digestive, and Kidney Diseases Information: (301) 654-3810 NIDDK Information Office (Thyroid Diseases) Bldg. 31/Rm. 9A04 31 Center Drive Bethesda, MD 20892-3560 (301) 496-3583 http://www.niddk.nih.gov National Institute of Neurological Disorders and Stroke Office of Scientific and Health Reports P.O. Box 5801 Bethesda, MD 20824 (301) 496-5751 http://www.ninds.nih.gov/ NIH Clinical Center Patient Recruitment and Referral Center—for specific NIH clinical trials information 4 West Drive, MSC 2655 Quarters 15 D-2 Bethesda, MD 20892-2655 (301) 411-1222 http://clinicalstudies.info.nih. gov/referring_patient.html Office of Rare Diseases, NIH Bldg. 31/Rm. 1B03 31 Center Drive Bethesda, MD 20892 (301) 402-4336 http://rarediseases.info.nih.gov/ord/ Other Resources Sponsored by the Department of Health and Human Services National Health Information Center (800) 336-4797 or (301) 565-4167 Health Finder: http://www.healthfinder.gov Combined Health Information Database http://chid.nih.gov Key About Health Websites on Autoimmune Diseases
Primary Autoimmune Association American Autoimmune Related Diseases Association 22100 Gratiot Ave. Eastpointe MI 48021-2227 Phone: 586-776-3900 Fax: 586-776-3903 http://www.aarda.org Thryoid Related Organizations Thyroid Foundation of America Ruth Sleeper Hall RSL 350 40 Parkman Street Boston, MA 02114-2698 02114-2698 Phone: 1-800-832-8321, 1-617-726-8500 Fax: 1-617-726-4136 http:/www.tsh.org Thyroid Cancer Survivor's Organization and Conference PO Box 1545 New York, NY 10159-1545 Tel: (877) 588-7904 (toll-free) / fax: 503-905-9725 http://www.thyca.org The MAGIC (Major Aspects of Growth In Children) Foundation for Children's Growth -- Thyroid Division 1327 N. Harlem Avenue Oak Park, IL 60302 Phone: 708-383-0808 Fax 708-383-0899 http://www.magicfoundation.org/clinhypo.html American Foundation for Thyroid Patients PO Box 820195 Houston, Texas 77282 http://www.thyroidfoundation.org/ Thyroid Society for Education and Research 7515 South Main Street, Suite 545 Houston, TX 77030 Phone: 1-800-THYROID Fax: 713-799-9919 http://www.the-thyroid-society.org National Graves' Disease Foundation 2 Tsitsi Court Brevard NC 28712 Tel: 1-704-877-5251, Fax: 1-704-877-5251 http://www.ngdf.org Other Organizations The following list is a starting point for additional information on other autoimmune diseases besides thyroid disease. Many of the organizations have extensive educational resources, local chapters, and support groups. The website of many organizations can refer you to other disease-oriented groups (for example, the Arthritis Foundation has alink to the Lupus Foundation). American Diabetes Association 1660 Duke Street Alexandria, VA 22314 (800) 232-3472 or (703) 549-1500 http://www.diabetes.org American Liver Foundation 1425 Pompton Avenue Cedar Grove, NJ 07009 (800) 233-0179 and (973) 256-2550 http://sadieo.ucsf.edu/alf/alffinal/h omepagealf.html Arthritis Foundation 1650 Bluegrass Lakes Pkwy. Alpharetta, GA 30009 (800) 283-7800 or (800) 207-8633 http://www.arthritis.org Crohn's and Colitis Foundation of America National Headquarters 386 Park Avenue South, 17th Floor New York, NY 10016-8804 (800) 932-2423 (800) 343-3637 (Warehouse) http://www.ccfa.org Juvenile Diabetes Foundation International 120 Wall Street New York, NY 10005-4001 (800) JDF-CURE or (800) 533-2873 http://www.jdf.org Lupus Foundation of America 1300 Piccard Drive, Suite 200 Rockville, MD 20850-4303 (800) 558-0121 and (301) 670-9292 http://www.lupus.org/ Myasthenia Gravis Foundation of America 222 S. Riverside Plaza, Suite 1540 Chicago, IL 60606 (800) 541-5454 or (312) 258-0522 http://www.myasthenia.org/ Myositis Association of America 755 Cantrell Avenue Suite C Harrisonburg, VA 22801 (540) 433-7686 http://www.myositis.org National Alopecia Areata Foundation 710 CStreet, Suite 11 San Rafael, CA 94901-3853 or P.O. Box 150760 San Rafael, CA 94915-0760 (415) 456-4644 Fax: (415) 456-4274 http://www.alopeciaareata.com National Multiple Sclerosis Society 733 Third Avenue, 6th Floor New York, NY 10017-3288 (800) 344-4867 or (212) 986-3240 Fax: (212) 986-7981 http://www.nmss.org e-mail: ire@nmss.org National Organization for Rare Disorders P.O. Box 8923 New Fairfield, CT 06812-1783 (800) 999-6673 http://www.rarediseases.org/ National Psoriasis Foundation 6600 SW 92nd Avenue, Suite 300 Portland, OR 97223 (800) 723-9166 or (503) 244-7404 http://www.psoriasis.org National Sjogren's Syndrome Association 5815 N. Black Canyon Highway, Suite 103 Phoenix, AZ 85015-2200 (602) 433-9844 http://www.sjogrens.org National Vitiligo Foundation P.O. Box 6337 Tyler, TX 75703 (903) 531-0074 Fax: (903) 531-9767 http://www.nvfi.org Sjogren's Syndrome Foundation 333 N. Broadway Jericho, NY 11753 1-800-4-SJOGRENS or (516) 933-6365 http://www.sjogrens.com Spondylitis Association of America P.O. Box 5872 Sherman Oaks, CA 91413 (800) 777-8189 or (888) 777-1594 http://www.spondylitis.org/ The S.L.E. Foundation 149 Madison Avenue, Suite 205 New York, NY 10016 (800) 745-8787 http://www.lupus.org United Scleroderma Foundation 89 Newbury Street, Suite 201 Danvers, MA 01923 800) 722-HOPE Fax: (978) 750-9902 http://www.scleroderma.org Wegener's Foundation 3705 South George Mason Drive, Suite 1813 Falls Church, VA 22041 (703) 931-5852 Wegener's Granulomatosis Support Group P.O. Box 28660 Kansas City, MO 64188-8668 (800) 277-9474 Fax: (816) 436-8211 http://www.wgsg.org
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All information is intended for your general knowledge only and is not a substitute for medical advice or treatment for specific medical conditions. You should seek prompt medical care for any specific health issues and consult your physician or health practitioner before starting a new treatment program. Please see our full disclaimer. | ||||||||||