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Understanding Autoimmune Diseases, Including Autoimmune Thyroid Conditions
Autoimmune Diseases -- Web, Support Groups, Government Resources

Adapted by Mary Shomon



Resources

National Institutes of Health (NIH) Resources

The following NIH components support medical research and/or provide information on varying aspects of autoimmune diseases.

National Institute of Allergy and Infectious Diseases
Office of Communications
Bldg. 31/Rm. 7A50
31 Center Drive, MSC 2520
Bethesda, MD 20892-2520
(301) 496-5717
http://www.niaid.nih.gov/publications/

National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse/NIH
1 AMS Circle
Bethesda, MD 20892-3675
Fast Facts: (301) 881-2731 (to receive information by fax)
Clearinghouse: (301) 495-4484
http://www.nih.gov/niams/healthinfo/

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Information Clearinghouse
1 Information Way
Bethesda, MD 20892-3560
Diabetes, Digestive, and Kidney Diseases Information:
(301) 654-3810

NIDDK Information Office (Thyroid Diseases)
Bldg. 31/Rm. 9A04
31 Center Drive
Bethesda, MD 20892-3560
(301) 496-3583
http://www.niddk.nih.gov

National Institute of Neurological Disorders and Stroke
Office of Scientific and Health Reports
P.O. Box 5801
Bethesda, MD 20824
(301) 496-5751
http://www.ninds.nih.gov/

NIH Clinical Center
Patient Recruitment and Referral Center—for specific NIH clinical trials information
4 West Drive, MSC 2655
Quarters 15 D-2
Bethesda, MD 20892-2655
(301) 411-1222
http://clinicalstudies.info.nih. gov/referring_patient.html

Office of Rare Diseases, NIH
Bldg. 31/Rm. 1B03
31 Center Drive
Bethesda, MD 20892
(301) 402-4336
http://rarediseases.info.nih.gov/ord/

Other Resources Sponsored by the Department of Health and Human Services

National Health Information Center
(800) 336-4797 or (301) 565-4167
Health Finder: http://www.healthfinder.gov

Combined Health Information Database
http://chid.nih.gov

Key About Health Websites on Autoimmune Diseases


Primary Autoimmune Association

American Autoimmune Related Diseases Association
22100 Gratiot Ave.
Eastpointe MI 48021-2227
Phone: 586-776-3900
Fax: 586-776-3903
http://www.aarda.org

Thryoid Related Organizations

Thyroid Foundation of America
Ruth Sleeper Hall RSL 350
40 Parkman Street
Boston, MA 02114-2698 02114-2698
Phone: 1-800-832-8321, 1-617-726-8500 Fax: 1-617-726-4136
http:/www.tsh.org

Thyroid Cancer Survivor's Organization and Conference
PO Box 1545
New York, NY 10159-1545
Tel: (877) 588-7904 (toll-free) / fax: 503-905-9725
http://www.thyca.org

The MAGIC (Major Aspects of Growth In Children) Foundation for Children's Growth -- Thyroid Division
1327 N. Harlem Avenue Oak Park, IL 60302
Phone: 708-383-0808 Fax 708-383-0899
http://www.magicfoundation.org/clinhypo.html

American Foundation for Thyroid Patients
PO Box 820195
Houston, Texas 77282
http://www.thyroidfoundation.org/

Thyroid Society for Education and Research
7515 South Main Street, Suite 545
Houston, TX 77030
Phone: 1-800-THYROID Fax: 713-799-9919
http://www.the-thyroid-society.org

National Graves' Disease Foundation
2 Tsitsi Court
Brevard NC 28712
Tel: 1-704-877-5251, Fax: 1-704-877-5251
http://www.ngdf.org

Other Organizations

The following list is a starting point for additional information on other autoimmune diseases besides thyroid disease. Many of the organizations have extensive educational resources, local chapters, and support groups. The website of many organizations can refer you to other disease-oriented groups (for example, the Arthritis Foundation has alink to the Lupus Foundation).

American Diabetes Association
1660 Duke Street
Alexandria, VA 22314
(800) 232-3472 or (703) 549-1500
http://www.diabetes.org

American Liver Foundation
1425 Pompton Avenue
Cedar Grove, NJ 07009
(800) 233-0179 and (973) 256-2550
http://sadieo.ucsf.edu/alf/alffinal/h omepagealf.html

Arthritis Foundation
1650 Bluegrass Lakes Pkwy.
Alpharetta, GA 30009
(800) 283-7800 or (800) 207-8633
http://www.arthritis.org

Crohn's and Colitis Foundation of America
National Headquarters
386 Park Avenue South, 17th Floor
New York, NY 10016-8804
(800) 932-2423
(800) 343-3637 (Warehouse)
http://www.ccfa.org

Juvenile Diabetes Foundation International
120 Wall Street
New York, NY 10005-4001
(800) JDF-CURE or (800) 533-2873
http://www.jdf.org

Lupus Foundation of America
1300 Piccard Drive, Suite 200
Rockville, MD 20850-4303
(800) 558-0121 and (301) 670-9292
http://www.lupus.org/

Myasthenia Gravis Foundation of America
222 S. Riverside Plaza, Suite 1540
Chicago, IL 60606
(800) 541-5454 or (312) 258-0522
http://www.myasthenia.org/

Myositis Association of America
755 Cantrell Avenue
Suite C
Harrisonburg, VA 22801
(540) 433-7686
http://www.myositis.org

National Alopecia Areata Foundation
710 CStreet, Suite 11
San Rafael, CA 94901-3853
or
P.O. Box 150760
San Rafael, CA 94915-0760
(415) 456-4644
Fax: (415) 456-4274
http://www.alopeciaareata.com

National Multiple Sclerosis Society
733 Third Avenue, 6th Floor
New York, NY 10017-3288
(800) 344-4867 or (212) 986-3240
Fax: (212) 986-7981
http://www.nmss.org
e-mail: ire@nmss.org

National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812-1783
(800) 999-6673
http://www.rarediseases.org/

National Psoriasis Foundation
6600 SW 92nd Avenue, Suite 300
Portland, OR 97223
(800) 723-9166 or (503) 244-7404
http://www.psoriasis.org

National Sjogren's Syndrome Association
5815 N. Black Canyon Highway, Suite 103
Phoenix, AZ 85015-2200
(602) 433-9844
http://www.sjogrens.org

National Vitiligo Foundation
P.O. Box 6337
Tyler, TX 75703
(903) 531-0074
Fax: (903) 531-9767
http://www.nvfi.org

Sjogren's Syndrome Foundation
333 N. Broadway
Jericho, NY 11753
1-800-4-SJOGRENS or (516) 933-6365
http://www.sjogrens.com

Spondylitis Association of America
P.O. Box 5872
Sherman Oaks, CA 91413
(800) 777-8189 or (888) 777-1594
http://www.spondylitis.org/

The S.L.E. Foundation
149 Madison Avenue, Suite 205
New York, NY 10016
(800) 745-8787
http://www.lupus.org

United Scleroderma Foundation
89 Newbury Street, Suite 201
Danvers, MA 01923
800) 722-HOPE
Fax: (978) 750-9902
http://www.scleroderma.org

Wegener's Foundation
3705 South George Mason Drive, Suite 1813
Falls Church, VA 22041
(703) 931-5852

Wegener's Granulomatosis Support Group
P.O. Box 28660
Kansas City, MO 64188-8668
(800) 277-9474
Fax: (816) 436-8211
http://www.wgsg.org

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Sticking Out Our Necks and this website are Copyright Mary Shomon, 1997-2006. All rights reserved. Mary Shomon, Editor/Webmaster
All information is intended for your general knowledge only and is not a substitute for medical advice or treatment for specific medical conditions. You should seek prompt medical care for any specific health issues and consult your physician or health practitioner before starting a new treatment program. Please see our full disclaimer.