BEVERLY'S RESEARCH SITE
Hashimoto's Encephalopathy - A Complete List of Published Case Studies
Hashimoto's Encephalopathy Information Home Page
Introductory article on
Hashimoto's Encephalopathy http://thyroid.about.com/library/weekly/aa060900a.htm
In-depth article by Beverly Seminara on
Hashimoto's Encephalopathy, including
medical journal references: http://www.thyroid-info.com/hashimotos-encephalopathy.htm
THYROID DISEASE INFO
Information on thyroid disease in general
|FREQUENTLY ASKED QUESTIONS|
by Beverly Seminara
Listed here are Frequently Asked Questions (FAQ's) about Hashimoto's Encephalopathy.
FAQ - DIAGNOSED WITH HASHIMOTO'S THYROIDITIS
Introduction: - If you have just been diagnosed with Hashimoto's Thyroiditis (H.T.) also known as Hashimoto's Disease - I suggest you go directly to Mary Shomon's Thyroid Site. In addition, see the related Subjects and Links I have provided below.
If you or a loved one has indeed been diagnosed with H.E. - Hashimoto's Encephalopathy, I cannot stress enough how important it is for you to please join us an online support group.
If you have been diagnosed with H.T. or hypothyroidism - this does NOT mean you have Hashimoto's Encephalopathy or that you will get H.E. Just because the name:Hashimoto's - appears in both, does not necessarily mean one leads to the other. I strongly urge you to go to the links I have listed below.
Hashimoto's Thyroiditis and Hypothyroidism The following Links provide expert knowledge and much more information about Hashimoto's Thyroiditis and hypothyroidism than I can give. Even though I have both, I do not have the expert knowledge that Mary Shomon does about this Disease and this condition - just as Mary does not have the knowledge about H.E. as I do.
Hashimoto's Encephalopathy (H.E.) - A relapsing encephalopathy occurring in association with Hashimoto's Disease, with high titers of antithyroid antibodies. Clinically, the condition presents with altered consciousness, confusion, focal or generalized seizures, myoclonus, and episodes of stroke-like deterioration.Source: Companion to Clinical Neurology, William Pryse-Phillips, MD. (Lond.) Professor of Medicine (Neurology) Memorial University of Newfoundland Faculty of Medicine, St. Johns, Newfoundland, Canada. Little, Brown and Company, 1991.
HIGH PULSE IV STEROID TREATMENTCorticosteroids are any of the Steroids I mentioned above. We did try Prednisone initially before the IV High Pulse Steroid Treatment. I reacted very badly. I had severe tremors, was extremely shaky, and a host of other problems. This is when it was decided to go with the Medrol (Methylprednisolone) since it is less harsh on ones' body. I responded well to the Medrol, besides all the horrible side effects of being on a high dose of any Steroid.
"Patient was given High Pulse IV Steroid Treatment in the Hospital. 1 Gram Solu-Medrol IV, (Methylprednisolone) usually given in one hour or throughout the day.
This Patient was given this dosage in one hour, then off IV. IV given every day in the Hospital for 3 days. 4th day Patient was observed for side effects.
Patient's Symptoms of Aphasia, Ataxia, Right-Sided Hemiparesis were no longer present. Her speech was perfect, as was articulation, rhythm, her balance greatly improved, and she no longer needed her cane. Right-Sided Hemiparesis subsided. Patient no longer stated "feeling numb," on her Right Side. Patient was discharged on 48 milligrams of oral Methylprednisolone (Medrol) twice a day, total milligrams a day, 96.
Slowly decreased milligrams over a period of 2 - 4 months. Patient suffered serious case of rare side effect of Steroid Induced Myopathy. Home Health Care was required for Patient.
This Patient Relapsed at 3 milligrams, after 7 months of slowly decreasing Medrol. Decrease of Medrol was watched carefully to avoid Adrenal shock. Upon presenting symptoms of a Relapse, milligrams should be upped to dosage before Relapse, therefore correct dosage was realized to stabilize patient.
When/If Relapse occurs, either increase daily dosage by 2 milligrams or double daily dose of milligrams for 2 - 3 days to counteract Relapse, then back to original daily dosage. This depends on the clinical course of the Patient."