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Sticking Out Our Necks | Issue #61 -- September 2002
"We're Patients...Not Lab Values!

from Mary J. Shomon, Author of Living Well With Hypothyroidism, Living Well With Autoimmune Disease, and The Thyroid Diet Success Guide

IN THIS ISSUE:

  • Special New Subscriber Value Package! Save $11! For Online Orders Only!
  • 5th Annual Thyroid Cancer Conference Scheduled For October 11-13 In Los Angeles, California
  • New Research Looks At Anti-thyroid Effects Of Soy And Its Isoflavones
  • Ask The Experts: Can Basal Body Temperature Diagnose A Thyroid Condition?
  • Living Well With Autoimmune Disease - On Sale October 8th!
  • Thyroid Links To Investigate
  • Dr. David Derry's Battle
  • The Weston Price Foundation, Promoting Nourishing Traditions And Healthy Eating
  • Broda Barnes Foundation Meeting A Success!
  • Tears Behind Closed Doors, 2nd Edition Published
  • Join Me At The Conference On Effective Treatment Of Fibromyalgia, Chronic Fatigue Syndrome, ME & MPS
  • The End Fatigue Energy Revitalization System
  • Test Your TSH At Home
  • Trying To Lose Weight? Take "A Weight Off Your Mind!"
  • Thyroid Diet Success Guide
  • Iodized Salt Improves Effectiveness Of Levothyroxine Therapy After Goiter Surgery
  • Patients With Autoimmune Thyroiditis May Have Decreased Salivary Function
  • Hereditary Aspects Of Graves' Disease
  • Endometriosis Patients Face Higher Risk Of Thyroid And Other Conditions
  • Treated And Untreated Hypothyroidism Raise Risk Of Cholesterol Problems And Heart Disease In Older People
  • Living Well With Hypothyroidism Goes To 15th Printing!
  • Flush Your Fat, Cold Weather Thyroid Planning, Fall Birthdays
  • Welcome to the sixty-first issue of "Sticking Out Our Necks!" my thyroid disease news report. This newsletter is copyrighted by Mary Shomon, and cannot be legally reproduced without permission. Feel free, however, to forward a single copy to someone who might be interested in reading the newsletter or subscribing to it in the future.

    ON THE WEB: My Thyroid Disease Information Source and News Report home page is located at http://www.thyroid-info.com, and I also run a comprehensive Thyroid Disease site at About.com, which you can visit at http://thyroid.about.com.

    SUBSCRIBING/UNSUBSCRIBING/DISTRIBUTION: Special note!! This month, I’ve moved the list from Yahoogroups to the private Topica Email Publisher system. This way, we will no longer have ads inserted by Yahoo, and your ability to subscribe and unsubscribe should be greatly simplified. You can also receive the newsletter in HTML format if you wish! As always, however, your email address remains sacred and will not be sold or made available to ANYONE!

    Subscribe!
    Enter your email to receive Sticking Out Our Necks today!

     
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    To subscribe to the email version of "Sticking Out Our Necks,” using the address you wish to sign up, send an email to thyroidnews-subscribe@topica.email-publisher.com
    To unsubscribe, send an email to ThyroidNews-unsubscribe@topica.email-publisher.com

    (If you have any problems subbing or unsubbing, email me at news@thyroid-info.com and I’ll personally handle it for you)

    To contribute information, thoughts or ideas for the newsletter, write to me, the editor, Mary Shomon personally, at news@thyroid-info.com

    ON THE WEB: My Thyroid Disease Information Source and News Report home page is located at www.thyroid-info.com , and I also run a comprehensive Thyroid Disease site at About.com, which you can visit at http://thyroid.about.com.

    SEND NEWS! If you see something thyroid-related in the news or on the web, please feel free to let me know, send me a note, or forward the URL to me if it's on the web. My email is news@thyroid-info.com, regular mail is P.O. Box 0385, Palm Harbor, FL 34682, fax is: 425-977-1175

    SPECIAL NEW SUBSCRIBER VALUE PACKAGE! SAVE $11! FOR ONLINE ORDERS ONLY!

    The best possible value for those who want the Thyroid Diet Guide, and the bimonthly print/mail subscription to the full-text “Sticking Out Our Necks” Newsletter! You’ll get:
    • The Thyroid Diet Guide -- Thyroid Diet Guide (a $15 value), with Mini-pocket guide
    • A One-Year Mail Subscription (6 bimonthly 12-page issues) to the print edition of "Sticking Out Our Necks: The Thyroid Disease News Report" (a $25 value)
    • The 8-page Summer 2002 Thyroid News Roundup, Featuring More than 40 Thyroid-Related News Stories (a $8.00 value)
    A $48 value, all for only $37 plus postage. You save $11!



    5TH ANNUAL THYROID CANCER CONFERENCE SCHEDULED FOR OCTOBER 11-13 IN LOS ANGELES, CALIFORNIA

    The Thyroid Cancer Survivors’ 5th International Conference will take place at the Los Angeles Athletic Club, 431 West 7th Street, Los Angeles, California. Sponsored by the national nonprofit organization ThyCa: Thyroid Cancer Survivors’ Association, Inc., this event offers more than 60 sessions for people newly diagnosed with thyroid cancer, survivors of many years, and their family members.

    Walk-in registration begins each morning at 8 a.m. Sessions go all day until 5:30 p.m. Friday, 5:15 p.m. Saturday, and 3:30 p.m. Sunday. The conference fee is $45, with discounts for added family members and guests, as well as ThyCa members. Scholarships are available to anyone unable to afford the fee. The program and registration materials are available on the ThyCa web site at
    http://www.thyca.org.

    The conference sessions are informal and interactive, to give participants the opportunity to share experiences and suggestions on self-care and coping with the emotional and practical impacts of thyroid cancer and to ask leading questions of leading thyroid cancer experts. Some of the more than 60 presentations and workshops include:

    Friday, October 11
  • Ask a Doctor about Papillary and Follicular Thyroid Cancer. Nicholas Sarlis, M.D., Ph.D., Endocrinologist, National Institutes of Health, Bethesda, Maryland.
  • Survivor’s Success Story. Karen Smyers, World Champion Triathlete and Thyroid Cancer Survivor, Massachusetts.
  • I-123 Imaging: Withdrawal and Thyrogen Scanning. Susan Mandel, M.D., Endocrinologist, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania.
  • Advanced Thyroid Cancer Monitoring and Treatment. Bryan Haugen, M.D., Endocrinologist, University of Colorado Health Sciences Center, Denver, Colorado.
  • Thyroid Cancer: Dealing with Feelings. Stephanie Anderson-Ladd, M.A., MFT, ThyCa Volunteer, California.
  • Health Insurance: Ask an Attorney about Portability, Access, and Claims Denial. Mark Hiepler, Esq., Attorney, Insurance Issues, Hiepler & Hiepler, Oxnard, California.
  • Treatment of Thyroid Cancer: A Nuclear Medicine View. Donald Margouleff, M.D., Chief of Nuclear Medicine, North Shore University Hospital, Manhasset, New York
  • Update on the Low-Iodine Diet. Stephanie Lee, M.D., Endocrinologist, Boston Medical Center, Boston, Massachusetts.
  • Survivors’ Roundtable: Rapport-Building Between Doctors and Patients.
  • Ask an Endocrinologist: Treatment Decisionmaking, When to Get a Second Opinion. Inder Chopra, M.D., Endocrinologist, UCLA School of Medicine, Los Angeles, California.

    Saturday, October 12
  • If You’re New to Thyroid Cancer. Matthew Ringel, M.D., Endocrinologist, Washington Hospital Center, Washington, DC.
  • Ask a Doctor: Medullary Thyroid Cancer. Douglas Evans, M.D., Surgeon, University of Texas M.D. Anderson Cancer Center, Houston, Texas.
  • Cancer Research Frontiers: Anti-Angiogenesis and Immunotherapy. H. Richard Alexander, M.D., Surgeon, National Cancer Institute, National Institutes of Health, Bethesda, Maryland.
  • Caregivers’ Roundtable. Jon Guljord, Florida, and Mark Irion, Pennsylvania, ThyCa Volunteers. -Legal Issues: Employment, Workplace, Disability. Marvin Krakow, Esq., Attorney, Employment Issues, Los Angeles, California.
  • Treating Neck Spread of Thyroid Cancer. Gary Clayman, M.D., Surgeon, University of Texas M.D. Anderson Cancer Center, Houston, Texas.
  • When a Child or Adolescent Has Thyroid Cancer. Gary Francis, M.D., Endocrinologist, Uniformed Services University of the Health Sciences, Bethesda, Maryland, and Walter Reed Medical Center, Washington, D.C.
  • Anaplastic Thyroid Cancer: Ask a Doctor. Matthew Ringel, M.D., Endocrinologist, Washington Hospital Center, Washington, D.C.
  • Medullary Thyroid Cancer: Research Update. Robert Gagel, M.D., Endocrinologist, University of Texas M.D. Anderson Cancer Center, Houston, Texas.
  • Coping with Thyroid Cancer and Other Medical Issues at the Same Time— Fibromyalgia, Other Cancers, Others. Kathleen Rand, Nevada, and Mary Rose Weckerle, Michigan, ThyCa Volunteers.
  • Scan Negative, TG Positive, EBR Therapy. Richard Kloos, M.D., Endocrinologist, Ohio State University, Columbus, Ohio.
  • Ask a Doctor: Using Thyrogen. Michael McDermott, M.D., Endocrinologist, University of Colorado Health Sciences Center, Denver, Colorado, and Paul Gelep, Genzyme Therapeutics, Cambridge, Massachusetts.
  • Pregnancy, Maternity Care, Parenting, and Thyroid Cancer. Rena Sellin, M.D., Endocrinologist, University of Texas M.D. Anderson Cancer Center, Houston, Texas.
  • Local Support Groups: Workshop for Current and Prospective Facilitators. Leah Guljord, ThyCa Support Group Coordinator, Florida.
  • Update on PET Scans and Other Imaging Techniques. R. Michael Tuttle, M.D., Endocrinologist, Memorial Sloan-Kettering Cancer Center, New York, New York.
  • Receiving and Giving Support Through ThyCa’s E-mail Support Groups and AOL Live Chat. Elizabeth Irion, Co-Facilitator, AOL Thyroid Cancer Mutual Support Group, Pennsylvania; Marilyn Sherman, Facilitator, ThyCa San Diego County Support Group, California.
  • Long-Term Survivors’ Roundtable: Living with Thyroid Cancer Over the Years
  • Talk About It! Family Communications, Intergenerational Issues: Roundtable

    Sunday, October 13
  • Ask a Doctor about Thyroid Cancer Care. Peter Singer, M.D., Endocrinologist, USC Ambulatory Care Health Center, Los Angeles, California; President-Elect, American Thyroid Association.
  • Radiation Safety Tips and Suggestions at Home: Survivors’ Roundtable. Moderator: Bryan Benesch, ThyCa Volunteer, Maryland.
  • Humor and Health. Megan Stendebach, ThyCa Volunteer, Texas.
  • Ask a Doctor: Management of Papillary and Follicular Thyroid Cancer over the Lifetime. Jerome Hershman, M.D., Endocrinologist, UCLA School of Medicine, Los Angeles, California.
  • Treating Medullary Thyroid Cancer. Pam Schultz, Ph.D., R.N., Program Director for Endocrinology, University of Texas M.D. Anderson Cancer Center, Houston, Texas.
  • Issues and Needs in Thyroid Cancer Research. Gregory Brent, M.D., Endocrinologist, UCLA School of Medicine and VA Greater Los Angeles Healthcare System, Los Angeles, California.
  • Doctor/Patient Communication: Roundtable. Peggy Melton, ThyCa Volunteer, Texas.
  • Fun with Cooking and Tasty Snacks on the Low-Iodine Diet. Leah Guljord, ThyCa
  • Volunteer and Editor, ThyCa Low-Iodine Cookbook, Florida.

    For more information: ThyCa: Thyroid Cancer Survivors' Association, Inc.
    www.thyca.org
    E-mail: thyca@thyca.org
    Toll-Free Phone: 1-877-588-7904


    NEW RESEARCH LOOKS AT ANTI-THYROID EFFECTS OF SOY AND ITS ISOFLAVONES

    One of the world’s leading soy researchers, Dr. Daniel Doerge, is lead author on a research review that was recently published. The study looked at the evidence in both people and animals that soy has anti-thyroid effects.

    There were a number of interesting findings:
    • In animal studies, a diet heavy in soy was able to produce a severe hypothyroid state characterized by decreased T4, increased TSH and enlarged thyroid – but only when the animals were also iodine deficient.
    • In other animal studies, only whole soy – but not isoflavones alone – were sufficient to produce a hypothyroid condition, and again, when the animals were also iodine deficient
    • Soy-induced goiter, elevated TSH levels, and other hypothyroid indicators can occur in humans in the absence of iodine deficiency.
    • There is evidence that soy consumption may adversely affect the course of autoimmune thyroid disease in women.
    • Iodine deficiency is an increasing concern among Americans, because of reduction in use of iodized salt as a treatment for high blood pressure. Iodine deficiency may, in conjunction with soy consumption, be a combination that can produce a hypothyroid condition in humans, and this warrants further study.
    • Because of the connections between soy isoflavone ability to stimulate certain immune function, promote formation of antigens, and worsen autoimmune disease, further study of the use of soy formula in children is warranted.
    Source: Doerge, Daniel. R., Chang, Hebron, C. “Review: Inactivation of thyroid peroxidase by soy isoflavones, in vitro and in vivo,” Journal of Chromatography B, 777 (2002) 269-279


    ASK THE EXPERTS: CAN BASAL BODY TEMPERATURE DIAGNOSE A THYROID CONDITION?

    Patient Question
    "My doctor is using my Basal Body temperature as a guide to determine if I've met my optimum thyroid medication level. I take my temperature under my arm first thing upon waking for 3 days in a row and write it down. I have read recently that this is much more accurate than the blood tests (target range being 97.8 to 98.2), so why don't other doctors use this method? I had never heard of using he basal temperature until I went to this doctor. As a side note to you, my basal temperature for the 3 days ranged from 95.8 to 96.8, though my TSH level at my last doctor was in the normal range (that doctor has been "fired" by me). Since that TSH test my thyroid meds have been increased by my new doctor, and my BBT is still low. I would like to hear another doctor's opinion on the BBT method of testing..."

    Drs. Richard & Karilee Shames Answer
    There is considerable evidence that current tests both for the diagnosis of hypothyroidism and for the management of a case under treatment are tests that lack sensitivity and accuracy. Faced with this situation, in my medical practice and in my second opinion telephone coaching sessions with patients of other practitioners, I absolutely insist on basal temperatures being part of the equation. For people who are wondering if their health problems are due totally or in part to an underactive thyroid, basal temperature testing is not the only diagnostic maneuver that I use..."

    Read the entire response now

    * * *
    Dr. Richard Shames has practiced for over 30 years, written and lectured widely on thyroid-related topics, and is considered an expert in the field. He practices in San Rafael, CA. Karilee Shames has been an assistant professor of nursing, and has led thyroid support groups for many years. In addition to writing their popular book, Thyroid Power, they are regular contributors to Thyroid-Info.com, and provide a service offering thyroid coaching education sessions to consumers nationwide by telephone. For more information, see their site, www.Thyroidpower.com.


    LIVING WELL WITH AUTOIMMUNE DISEASE - ON SALE OCTOBER 8TH!

    For those of you who have Hashimoto's disease, Graves' disease, or any autoimmune condition, my new book is hitting bookstores, and shipping from online booksellers next Tuesday, October 8th. Living Well With Autoimmune Disease: What Your Doctor Doesn't Tell You...That You Need to Know, is being published by Harper Collins, and is the second book in my ongoing "Living Well..." series.

    The book focuses on various autoimmune diseases and subclinical autoimmune syndromes, their symptoms, and the conventional - and alternative - treatments that can help reduce the risk of developing these conditions, help to keep them from worsening - and in some cases, even CURE them! It's also the only book to look at autoimmune diseases as one group of conditions with common or similar causes and triggers, and many common treatments to help.

    I spoke with dozens of the nation's most respected physicians and natural medicine experts with expertise in autoimmune disease to develop this book, which includes a variety of lifestyle issues, including diet, herbs and supplements, that you can use to help deal with autoimmunity in general, and specific conditions.

    Publisher's Weekly says "...this informative self-help manual is badly needed. Drawing on extensive research, as well as doctor-patient anecdotes, Shomon's guide is designed to empower patients to participate in their own care..."

    Subscribe!
    Enter your email to sign up for the free Autoimmune Report today!

     
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    In conjunction with the book's launch, my new newsletter, The Autoimmune Report, will be coming out next week, covering the issue of autoimmune disease specifically, so if you're interested, sign up now!! Sending an email to autoimmune-subscribe@topica.email-publisher.com with "Subscribe Autoimmune" in the subject for news and updates.
    To read a chapter, see the table of contents, read reviews, and find out how to order the book - online, go to
    www.autoimmunebook.com

    You can pre-order a copy now from Amazon.com, and they'll bill and ship next week when the book is released!

    For phone orders, call Politics and Prose Bookstore, 800-722-0790. Tell them you want the new book, Living Well With Autoimmune Disease, ISBN: 0060938196, by Mary Shomon.


    THYROID LINKS TO INVESTIGATE

    10 Thyroid Mistakes Your Doctor May Be Making
    Find out if your practitioner is making one of these common but critical mistakes that may be preventing you from feeling achieving optimal health.

    Kristin's Story: One Year Later
    More than a year after diagnosis, Kristin is waking up full of energy, ready to take on the planet, and she's even lost those stubborn last 15 pounds. Read the conclusion to Kristin's humorous, compelling and very personal five-part story about her diagnosis and treatment for hypothyroidism.

    Soy and the Thyroid -- Key Information
    The relationship between soy and the thyroid is complicated. But there's no question -- soy can impact your thyroid, and some experts believe that overconsumption of soy can damage the thyroid and trigger autoimmune disease. Find out more!


    DR. DAVID DERRY’S BATTLE

    Innovative Canadian practitioner Dr. David Derry has been under siege in Canada for his use of Armour thyroid, and other seemingly "unconventional" approaches to treating thyroid patients, and it seems that his battle may be lost, for now.
    Find out the latest developments now.


    THE WESTON PRICE FOUNDATION, PROMOTING NOURISHING TRADITIONS AND HEALTHY EATING

    I recently had the pleasure of having lunch with Sally Fallon and several of her board members from the
    Weston A. Price Foundation. What a lovely group of people, and an interesting organization!

    The Weston A. Price Foundation is a nonprofit organization founded in 1999 to promote the work of Dr. Weston Price, a nutritional expert who identified what he felt were optimum characteristics of human diets, based on studies of diets and food around the world. Dr. Price's research found that people have the best health when they consume nutrient-dense whole foods and the vital fat-soluble components found in animal fats.

    The Foundation is therefore dedicated to restoring these nutrient-dense foods to the human diet through education, research and activism. They support nutrition instruction, organic and biodynamic farming, pasture-feeding of livestock, community-supported farms, honest and informative labeling, prepared parenting and nurturing therapies. They support a ban on soy infant formulas, and are concerned about the health effects of overconsumption of soy foods in the American diet.

    fallon.jpg - 5362 BytesThe founder and president of the Foundation, Sally Fallon, has also written a fascinating cookbook, Nourishing Traditions: The Cookbook that Challenges Politically Correct Nutrition and the Diet Dictocrats, along with Mary Enig, Ph.D.

    The book proposes that the "Diet Dictocrats" don't want you to know some key information about food and nutrition, including the ideas that...
    • Your body needs old-fashioned animal fats
    • New-fangled polyunsaturated oils can be bad for you
    • Modern whole grain products can cause health problems
    • Traditional sauces promote digestion and assimilation
    • Modern food processing denatures our foods but Ancient preservation methods actually increase nutrients in fruits, nuts vegetables, meats and milk products!
    Nourishing Traditions offers an alternative to the highly processed, low-fat diets that have made America gain weight and develop more diseases.

    The book builds on the culinary customs and traditions of our ancestors, and looks ahead to a future of better health by offering a guide to wise food choices and proper preparation techniques. The book also features over 700 delicious recipes for a variety of incredible dishes.

    Personally, I believe this book is a tremendous addition to anyone's kitchen. It's packed with information, and it will make you entirely rethink your approach to food when you read this wonderful book. It is so filled with interesting tidbits of information - not to mention interesting recipes -- even a fantastic recipe for the best homemade baby formula that I wish I had a few years ago -- that you'll return to it again and again as a key reference. I highly recommend it!

    You can order the book now at Amazon.com or ask for it in bookstores (Nourishing Traditions, ISBN# 0967089735).

    I would also urge you to get to know the Foundation, by checking out their website at www.westonaprice.org. In particular, check out their various articles about soy and its health effects, including thyroid impact, that are featured at their "Soy Alert!" page.


    BRODA BARNES FOUNDATION MEETING A SUCCESS!

    I can’t say enough wonderful things about the Broda Barnes Foundation conference I attended last week in Stamford, Connecticut! What an eye-opening and enlightening experience!

    First, it was practically a
    “Thyroid Top Docs” reunion, as I had a chance to meet several frequently-recommended doctors from my Top Docs list who were there honing their skills in thyroid, adrenal and other hormonal diagnosis and treatment. Key presenters and “Thyroid Top Docs” David Brownstein, M.D., and Walter Woodhouse, M.D., both from Michigan, made it obvious that Michigan patients are very lucky to have these two astute practitioners to call upon for hormone, endocrine and autoimmune diagnosis, balancing and treatment!

    Second, I heard some very innovative and well-explained discussions regarding the use of hormones from presenter Denise Mark, M.D., who is a private practicing physician in southern California. There were also fascinating presentations from Alfred J. Plechner, D.V.M., a practicing veterinarian and partner of the California Animal Hospital in Los Angeles. For nearly three decades, Dr. Plechner has been studying and treating diseases in animals by correcting endocrine-immune imbalances, and his experiences brought up so many questions regarding treatments for similar problems in people. Bruce Fife, N.D. explored the topics he has written about in his popular books, The Healing Miracles of Coconut Oil and Eat Fat, Look Thin: A Safe and Natural Way to Lose Weight Permanently, and his information really made me think about the role of fats, including medium chain fatty acids, as part of healing, nutrition and weight loss. David Berg, M.S., C.I.S., F.A.H.A. explored little known connections between coagulation factors in the blood, and various diseases – and ultimately, their treatments.

    I met other innovative practitioners, including Dr. Patrick Kingsley, of Osgathorpe in the UK, and the renowned Dr. William Jeffries, who is credited with tremendous research into the area of physiological use of hydrocortisone therapy, and so many others I can’t possibly list them all here! I also discovered that that my own family doctor was there too! I didn’t know she was going to be there, but when I saw her on the first day, I was absolutely thrilled to know that she will be exploring some of the same topics that I will be looking at in months to come!

    So, thanks to my attendance at the conference, you’re going to be hearing more about the thyroid-adrenal connection, hormone balancing, and other essentials to good health as I continue reporting on thyroid disease.

    In the meantime, some things I highly suggest...
    • Check out the Broda Barnes Foundation’s website, at: www.brodabarnes.org. They offer information packages, as well as reprints of articles, transcripts of presentations, and audiotapes from conference speakers that can be of tremendous help in your search for thyroid and hormonal health.
    • Consider reading the book that started it all, Broda Barnes' Hypothyroidism: The Unsuspected Illness. Despite the book being published in 1976, it still stands as one of the definitive medical explorations of hypothyroidism and its many affects. You can find it at the Barnes Foundation website, or order it directly from Amazon.com.

    TEARS BEHIND CLOSED DOORS, 2ND EDITION PUBLISHED

    Diana Holmes is doing in the U.K. what I’ve been trying to do for the past five years here in the U.S. – speak up as a thyroid patient, and help make other patients – as well as doctors and media – take note that thyroid conditions are not “easy to diagnose, even easier to treat,” as so many physicians seem to erroneously believe.
    Here’s Di’s story:

    “Over a period of 23 years I was misdiagnosed six times with serious diseases and treated for them all. This was because thyroid blood test results were and still are misinterpreted world wide. My own blood test results were in the middle of the reference range and at that time I was using a wheelchair.

    A private General Practitioner diagnosed me with an underactive thyroid gland and since then (eight years ago) I have been researching.

    Nobody has a thyroid blood test when they are well, there is no need, so how do doctors know where you should be in the reference range. I have explained all of this in detail in my book, Tears behind Closed Doors.

    -- Diana Holmes”
    The second edition of Diana Holmes’ “Tears Behind Closed Doors is now available for purchase. To order your copy/copies, see
    www.thyroidtears.co.uk/tearsbehindcloseddoors.html.

    For more information on Diana Holmes’ work and book, visit her website at: www.thyroidtears.co.uk.


    JOIN ME AT THE CONFERENCE ON EFFECTIVE TREATMENT OF FIBROMYALGIA, CHRONIC FATIGUE SYNDROME, ME & MPS

    As many of you know, I'm knee deep into the writing of my new book, Living Well With Chronic Fatigue Syndrome and Fibromyalgia. As part of my research, I'm going to be attending Jacob Teitelbaum, M.D.'s Conference on Effective Treatment of Fibromyalgia, Chronic Fatigue Syndrome, ME & MPS, which is taking place November 2-3, 2002 in Annapolis, Maryland. (Dr. T is also going to be covering the same curriculum at a February 8-9, 2003 conference in Los Angeles.)

    Dr. T is author of the best-selling book From Fatigued to Fantastic" and lead author of recently published Landmark Study "Effective Treatment 0f Chronic Fatigue Syndrome and Fibromyalgia - A Randomized Double-blind Placebo-controlled Study."

    Dr. T's integrative approaches have, in testing, shown that the vast majority of patients improve, with substantial increases in quality of life.

    The April, 2002 issue of the Journal of the American Academy of Pain Management has said: "Teitelbaum's study is highly successful and makes Fibromyalgia a very treatable disorder. The study by Dr. Teitelbaum et al. and years of clinical experience makes this approach an excellent and powerfully effective part of the standard of practice for treatment of people who suffer from FMS and MPS - both of which are common and devastating syndromes."

    For more information on how to participate in these groundbreaking conferences, see Dr. Teitelbaum's website at
    https://www.endfatigue.com or email amy@endfatigue.com.


    THE END FATIGUE ENERGY REVITALIZATION SYSTEM

    Speaking of Dr. Teitelbaum, one of the things I really like to share is when I meet a fascinating practitioner, and I love to be able to recommend a product that I personally use that is really helping me. Last month, I had the pleasure to meet and speak at length with Dr. Teitelbaum himself, and visit his lovely clinic, which is nestled in the woods in Annapolis, Maryland. It was a pleasure to learn more about this innovative and caring practitioner!

    If you haven't read his book, From Fatigued to Fantastic it's definitely a recommended read for anyone with an autoimmune condition who struggles with fatigue, and is required reading for anyone with diagnosed or suspected CFS and FMS.

    Just in the past month, Dr. Teitelbaum has released the "End Fatigue Energy Revitalization System," a set of products manufactured to his exacting specifications by Enzymatic Therapies/PhytoPharmica, for people who suffer from lack of daytime energy, often followed by restless sleep. (If you're not familiar with Enzymatic Therapies, they are one of the most respected supplement manufacturers in the world! I have used several of their products, and have a high level of trust in the quality of their products.)

    Dr. Teitelbaum's "End Fatigue Energy Revitalization System" includes several products:

    • Daily Energy Enfusion Drink Mix to help build all-day energy and endurance. One scoop a day of this citrus powder replaces approximately 25 supplement tablets. The Enfusion drink is designed to be taken with the Daily Energy B Complex, to support endurance and energy. This product is available at most health food and vitamin stores, various online outlets, Dr. Teitelbaum's website, and from online retailer Iherb.com.
    All of Dr. Teitalbaum's royalties are donated to charity. When you order directly from Dr. Teitelbaum's website, or by calling 800-333-5287, all profits from the sale of any products are also donated directly to charitable causes.

    For a month, I personally have been taking the B vitamins and Enfusion Drink (it replaces about 20 different vitamin and supplement pills I was taking daily, and ends up costing me so much less in terms of money, plus time spend swallowing big pills!) I've found that half a scoop (half the general recommended daily dose) is the optimal dose for me. (You can take up to the standard dose of a full scoop a day, but if you're like me, the iodine in a half-scoop may be as much as you need each day. I find half a scoop leaves me energized and feeling great, but a full scoop may have a bit too much iodine for my particular metabolism and thyroid status). The Energy Enfusion Drink tastes nice as well - it has a light citrus-like flavor. I also use one of the Sleep Formula pills each night, and find that I sleep through the night more regularly, and am waking up in the morning far more refreshed and energized. So, whether or not diagnosed with CFS or FMS, I can wholeheartedly recommend this product to anyone looking for more energy and better sleep!

    TEST YOUR TSH AT HOME
    tshprod.jpg - 26607 BytesIf you're not having luck convincing your physician to conduct a thyroid test, or your HMO or insurance only covers one or two thyroid tests a year and you want more frequent testing, consider home tests from BIOSAFE Laboratories. Last year, Biosafe received FDA approval for consumer use of its Thyroid Stimulating Hormone (TSH) test, the first time a TSH test has been approved for at-home use. The Biosafe home TSH test requires a nearly painless micro-sample (one to three drops) of blood taken from your finger at home - no long and painful blood draws from your arm at a lab! You mail in your test kit in the provided container, and results are mailed back to you quickly. A home TSH test from Biosafe is $39.95. For more information, see http://www.thyroid-info.com/tshtest.htm, or call 1-800-768-8446 EXT 123, for more information.


    GRAVES' DISEASE CONFERENCE

    The National Graves' Disease Foundation will be holding a conference in October. For more details, see http://thyroid.about.com/library/news/blngdf.htm


    TRYING TO LOSE WEIGHT? YOU NEED "A WEIGHT OFF MY MIND: THE THYROID/AUTOIMMUNE DIET NEWS!"

    If you're not receiving the free email newsletter, "A Weight Off My Mind" -- the thyroid and autoimmune diet newsletter, you are missing newsletters jam-packed with information about weight loss, metabolism, thyroid disease's impact on weight, and much more!

    Here are some stories covered in the September issue:
    • Is Your Doctor Making Thyroid Treatment Mistakes That Can Interfere With Your Weight Loss?
    • When Did 'Added Sugar' Become a Vital Nutrient? -- Dr. Robert Atkins Strikes Back on Diet Guidelines
    • Defeating Negative Thinking With One Word!
    • When It Comes to Diet, If It Sounds Too Good to be True, It Usually Is!
    • All About Almonds!
    The September issue is online at:
    http://www.thyroid-info.com/dietnews/9sep.htm

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    THE THYROID DIET SUCCESS GUIDE


    Thousands of people have already ordered their copies of the "Thyroid Diet Success Guide," and people are reporting that the low-glycemic approach featured in the guide is helping them slowly and safely lose weight.

    It's the only way I've been able to effectively lose weight (and believe, me, I've tried them all!!) The "Thyroid Diet Success Guide" features information about why it's harder for thyroid patients to lose weight, insulin resistance, the role of the adrenal system, and lots of practical suggestions to help you finally enjoy weight loss success. Just a few of the key features in the 35-page Guide include:
    • Weight Loss Secrets for Thyroid Patients
    • The Thyroid/Weight Loss Connection - Some Theories
    • How To Lose Weight With Hypothyroidism
    • Weight Loss Success: How I Lost 25 Pounds in 12 Weeks
    • The Ultimate Thyroid Exercise Program
    • Choosing the Right Weight Loss Program
    • The Habits of Successful Weight Loss
    • How Much Weight Do You Really Need to Lose?
    • Popular Weight Loss Myths
    • Seeing Results with Weight Loss and Exercising
    The "Thyroid Diet Success Guide" features a diet plan that you can follow, and specific information on exercises, and many other tips and resources. The Success Guide will help you get on the right track, with information that has actually helped other thyroid patients -- including me -- to effectively lose weight!

    NEW: Online Secure Ordering!

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    DISCOUNT FOR ONLINE ORDERING!
    US ORDERS: $12, plus $2 shipping and handling, for U.S. online orders
    OUTSIDE US: $12, plus $7 shipping and handling, for international online orders.

    Buy Your Thyroid Diet Guide Online Now
    Order by Mail
    To order, U.S. residents can send a check for $15 (which includes shipping and handling) made out to "Sticking Out Our Necks" to:

    Mary Shomon's "Thyroid Diet Success Guide"
    P.O. Box 0385
    Palm Harbor, FL 34682

    For an order form to pay by check or credit card, visit
    http://www.thyroid-info.com/dietbook.htm

    Phone Orders
    Or call our toll-free order line during weekday business hours at 888-810-9471 to order using your credit card.

    SPECIAL OFFER: We have reprinted the "Mini-Guides,” so if you order the "Thyroid Diet Success Guide" you will receive a free pocket-sized "Mini-Guide" that summarizes the key diet tips in a portable, easy-to-carry format!


    THYROID NEWSBRIEFS

    Here are recent thyroid-related findings and newsbriefs. Full text of these news stories are featured in the November/December issue of the print edition/subscriber version of “Sticking Out Our Necks” the Thyroid Disease News Report.

    A one year subscription is only $25.
    Order securely online now, with Visa, MasterCard, American Express or Discover, or via mail/phone/fax (Visa and MasterCard only). For information about subscribing see http://www.thyroid-info.com/subscribe.htm or call 1-888-810-9471.

    legalus.gif - 3069 BytesOrder online now, securely, using Visa, Mastercard, American Express or your Discover card, via secure processing with CCNow, and receive a year's subscription (6 bimonthly 12-page issues), plus the special 8-page Summer Thyroid News Roundup Report, which features 45 important thyroid-related news stories!


    Iodized Salt Improves Effectiveness of Levothyroxine Therapy after Goiter Surgery
    Research has shown that adding iodized salt to the diet in people who have had the thyroid partially removed for nontoxic goiter can make levothyroxine treatment more effective at reducing the size of remaining thyroid tissue.
    Source: Clinical Endocrinology, (Oxf) 2002 Oct;57(4):507-13

    Patients with Autoimmune Thyroiditis May Have Decreased Salivary Function
    Researchers have found that impaired salivary function is seen in significant levels among patients with autoimmune thyroiditis in general. Among those with autoimmune thyroiditis who suffer from a “dry mouth” – known as xerostomia -- significantly poorer salivary function was found.
    Source: Nuclear Medical Communications, 2002 Oct;23(10):1029-33

    Hereditary Aspects of Graves’ Disease
    Researchers have found that Graves’ disease is a condition that can be specifically inherited. The relatively low level of the condition showing up in identical twins, however, indicates that there are other environmental, nonheritable causes as well. Researchers found that if one identical twin has Graves’ disease, there’s a 17% risk that the other twin will also have the condition. In fraternal twins, the risk is slightly less than 2%. Where one twin had Graves’ disease, 17% of their twins who did not have Graves’ disease did, however, report that they had chronic thyroiditis, and 10% had other nonthyroid autoimmune conditions.
    Source: Ringold, et. al., “Further evidence for a strong genetic influence on the development of autoimmune thyroid disease: the california twin study,” Thyroid 2002 Aug;12(8):647-53

    Endometriosis Patients Face Higher Risk of Thyroid and Other Conditions
    According to research conducted by the Endometriosis Association, women with endometriosis may also have associated disorders related to autoimmune dysregulation or pain. Almost all those studied had pain (99%), and more than 40% reported infertility. Overall, hypothyroidism, fibromyalgia, chronic fatigue syndrome, autoimmune diseases, allergies and asthma are all significantly more common in women with endometriosis than in women in the general in the U.S.
    Source: Sinaii N, et. al., “High rates of autoimmune and endocrine disorders, fibromyalgia, chronic fatigue syndrome and atopic diseases among women with endometriosis: a survey analysis.” Hum Reprod 2002 Oct;17(10):2715-2724

    Treated and Untreated Hypothyroidism Raise Risk of Cholesterol Problems and Heart Disease in Older People
    Researchers have found that among older people, among those individuals studied who had subclinical hypothyroidism, 83% of them had unhealthy cholesterol levels and ratios. Poor cholesterol levels and ratios were seen in half of treated hypothyroidism patients. Coronary artery disease was seen in 56% of the patients with subclinical hypothyroidism, and 50% of those with treated hypothyroidism, versus only 16% of those with normal thyroid function.
    Source: Mya, et. al. ”Subclinical hypothyroidism is associated with coronary artery disease in older persons.” J Gerontol A Biol Sci Med Sci 2002 Oct;57(10):M658-9

    READ THE FULL TEXT OF THESE NEWS STORIES
    You can read the full text of these news stories in the November/December issue of "Sticking Out Our Necks" print edition. Subscribe now, and you'll receive the next issue! See our subscription page or call 1-888-810-9471 to subscribe.

    Free Special Report When You Order Now!

    If you are not receiving the Sticking Out Our Necks bimonthly print newsletter, you are missing out on essential thyroid news. But...there's still time to order your subscription and receive the September/October print issue.

    Subscribers also receive the free 8-page "Summer 2002 In-Depth Thyroid News Roundup Report," which features 45 news reports on thyroid disease, with research references. Some of the important news stories included in that special report include:
    • A Third of Patients Become Obese After RAI
    • Overweight Frequently Have Undetected Endocrine Problems
    • Low-Calorie Diets Cause Reduced Thyroid Function
    • T3 Treatment for Obesity?
    • Hyperthyroidism Increases Carbohydrate Cravings
    • Obesity and Hyperthyroidism Linkage Explored
    • Thyroid Disease and Its Effects on Blood Pressure
    • Iodine Use During Pregnancy
    • Gluten Sensitivity and Loss of Balance/Coordination
    • Thyroid Linked to Vitiligo
    • Subclinically Hypothyroid Women With Infertility and/or Menstrual Problems Should Receive Treatment
    • Thyroid Hormone Treatment Can Help Subclinical Hypothyroidism
    • New Cause of Congenital Hypothyroidism Discovered
    • Calcification and Solitary Nodules Present Greater Risk of Cancer
    • Head And Neck Cancers Rising Among U.S. Kids
    • T3 after Thyroidectomy or Prior to Thyroid Cancer Scan May be Unnecessary
    • Graves' Disease With Thyroid Cancer
    • Relapse Rates After Antithyroid Drugs for Graves' Disease
    • Total Thyroidectomy Recommended As Standard Graves' Treatment Outside U.S. Controversies Over RAI Examined
    • Effects of Suppressive Goiter Treatment on Osteoporosis Risk
    • Moderately Low TSH May Point to Nodular Disease
    • Hashimoto's Thyroiditis Can Show Up As Knee Pain
    • Cigarette Smoking and Hashimoto's Thyroiditis
    • New England Journal Researchers Followup on T3 Use
    • T4 Plus T3 Best Achieves Normal Levels in Blood and Tissues
    • Thyroid Surgery Under Local Anesthesia?
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    A one year subscription is only $25. Order online now, securely, using Visa, Mastercard, American Express or your Discover card, via secure processing with CCNow, and receive a year's subscription (6 bimonthly 12-page issues), plus the special 8-page Summer Thyroid News Roundup Report, which features 45 important thyroid-related news stories! Newsletter Order Information Page



    LIVING WELL WITH HYPOTHYROIDISM GOES TO 15TH PRINTING!

    Last I reported, "Living Well With Hypothyroidism" was in a 13th printing. But in August, it raced through a 14th printing, and in September, had a 15th printing!

    If you are hypothyroid, have had your thyroid surgically removed all or in part, or had your thyroid ablated via radioactive iodine -- basically, if you take thyroid hormone replacement drugs -- you’ll find hundreds of helpful ideas and information on how you can again live well. Solutions to problems such a fatigue, hair loss, weight gain, and more are discussed, as well as unique situations such as pregnancy/breastfeeding, depression with thyroid disease, and “going hypo” before thyroid cancer scans, and much more.

    For information, visit http://www.thyroid-info.com/book.htm and you'll find an overview and table of contents, with links to a free chapter online, reviews, and information on how to get your copy.

    Title: Living Well With Hypothyroidism: What Your Doctor Doesn't Tell You. . . That You Need to Know
    Author: Mary J. Shomon
    ISBN number: 0380808986
    List price: $13.50 (US dollars)
    Published by: HarperCollins

    TO GET A COPY:
    Living Well With Hypothyroidism is available at your local bookstore everywhere in the U.S. and if they don't have a copy, ask them to order you one!

    You can get the book everywhere online, including Amazon.com:
    http://www.amazon.com/exec/obidos/ASIN/0380808986/scratcthenetwebs

    For Phone Orders: call Politics and Prose, 800-722-0790


    NOTES FROM MARY

    Hi Everyone!

    I’ve been getting to know Ann Louise Gittleman, author of the mega-bestselling book, the Fat Flush Plan, and a respected author whose work I find both interesting and helpful! Her Fat Flush book offers a comprehensive weight loss approach that relies on internal cleansing, balanced proteins, essential fats, and good carbohydrates. By detoxing the liver, metabolism increases -­ which can help thyroid patients. I follow some key Fat Flush principles myself, and have found it helpful in my own weight loss efforts. Ann Louise is hosting a Fat Flush cruise, and it's a great time to start a healthy weight loss program! I wish I could be there for the first cruise, but other plans are already made! (Hopefully, I’ll be on an upcoming cruise!) But in the meantime,
    find out more about Fat Flush and the upcoming cruise!

    We’re having ultra warm weather here on the East Coast, and this extended summer reminds me to remind you – cold weather frequently increases your thyroid hormone requirements. So as temperatures eventually drop and it gets colder, and days shorter, if you start to feel more hypothyroid symptoms, be sure to get in and have your various thyroid levels and symptoms evaluated. And, if you have a history of winter fatigue and weight gain, and you have an innovative practitioner, talk to him or her about whether or not it would be a good idea for you to bump up your dosage slightly in anticipation of the cold weather, to ward off a cold-weather thyroid slowdown.

    And finally, in the category of health news that just baffles the brain...Austrian scientists have announced that people born in the autumn live longer than those born in the spring, and are less likely to develop chronic illnesses when they are older. The differences are attributed to the vitamins available during pregnancy at different times of the year, as well as the foods available to infants when they are ready for solid foods. In general, the researchers found that in the study they did of Austrians, adults born in autumn (October-December) lived about seven months longer than those born in spring (April-June), and in Denmark adults with birthdays in autumn outlived those born in spring by about four months. Similar results were seen in Australia (where people born April to June -- their "fall" -- lived four months longer. My birthday is in October, so I guess that's one piece of health news that I can get excited about this month!! (And a happy upcoming birthday and long lives to all my fellow Libra, Scorpio, Sag, and Capricorn long-lifers...!)

    Live well,

    Mary


    "Sticking Out Our Necks" email edition is published monthly by Mary Shomon. Please invite your friends to subscribe! Send them a copy with your recommendation. "Sticking Out Our Necks" is copyright 1997-2003 by Mary Shomon.

    Web: http://www.thyroid-info.com
    Email: news@thyroid-info.com
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    Mary Shomon
    P.O. Box 0385
    Palm Harbor, FL 34682
    Fax: 425-977-1175


  • Sticking Out Our Necks and this website are © Copyright Mary Shomon, 1997-2003. All rights reserved. Mary Shomon, Editor/Webmaster
    All information is intended for your general knowledge only and is not a substitute for medical advice or treatment for specific medical conditions. You should seek prompt medical care for any specific health issues and consult your physician or health practitioner before starting a new treatment program. Please see our full disclaimer.